As an FYI - the diagnosis that had been made for Bailey in utero ended up being incorrect.
Bailey did not end up passing away due to her complications from Osteogenesis Imperfecta but, instead, from a disease that has even a lower survival rate - a disease called Thanatophoric Displaysia. We will be providing information regarding this horrible disease that took our sweet baby's life in a later post.
Meanwhile, please enjoy some pictures of our darling angel, Bailey.
Daddy and Bailey right after finding out her new diagnosis and fatal prognosis.
Mommy and Bailey the day after birth.
Bailey and both of her brothers right before telling the boys of her fatal prognosis and removing her tubes.
Mommy and Daddy holding Bailey.
The Blake Family. (Shortly after removing Bailey's tubes.)
The ring and bracelet that the NICU unit gave us for Bailey. Her nurse put them on her and took this picture shortly after her death.
We love you, Bailey! Sleep well our little Angel.