As an FYI - the diagnosis that had been made for Bailey in utero ended up being incorrect.
Bailey did not end up passing away due to her complications from Osteogenesis Imperfecta but, instead, from a disease that has even a lower survival rate - a disease called Thanatophoric Displaysia. We will be providing information regarding this horrible disease that took our sweet baby's life in a later post.
Meanwhile, please enjoy some pictures of our darling angel, Bailey.
Proud big Brother - the day after birth.
Daddy and Bailey right after finding out her new diagnosis and fatal prognosis.
Mommy and Bailey the day after birth.
Bailey and both of her brothers right before telling the boys of her fatal prognosis and removing her tubes.
Mommy and Daddy holding Bailey.
The Blake Family. (Shortly after removing Bailey's tubes.)
The ring and bracelet that the NICU unit gave us for Bailey. Her nurse put them on her and took this picture shortly after her death.
We love you, Bailey! Sleep well our little Angel.
17 comments:
She is beautiful!! Thanks for sharing.
Love,
Bob, Jolie, Kayley, Zach and Brody
Chris and Jenn,
We are so sad for your loss. She is so blessed to have you all as her family. Our prayers and thoughts are with you.
Love the Merrill's
She is beautiful! Yo are such a strong family and an amazing example of faith. You are in our thoughs and prayers...
She is such a beautiful little angel. We are heartbroken for you. We hope that your family will feel the strength of all the prayers in your behalf. Words are so inadequate. We are thinking of you...
Love the Averett Family
What a beautiful little angel. That is so awesome that you took a family picture with her.
I had a baby boy with the same disease who lived for 48 minutes after birth. It has been 9 years ago, but it seems like yesterday, especially after seeing your precious baby. They are little angels. Cherish the pictures and the momentos you have of her. She will always be part of your family.
My prayers are with you and your family.
Love, B. Clark
Wow -- what a beautiful little baby! We are thinking of you and praying for your strength. What a journey to have to go through. Thanks for your great example of faith and courage. And thanks for sharing!
Love,
Erika and Ron Ward
Jenn & Chris,
Know that you are in our thoughts and prayers at this time! Bailey is beautiful and the pictures turned out wonderfully! We love you guys!
Heather & Rob Allen
Those pictures are so sweet. Your daughter will always be a part of your life. She will be in your hearts forever Jenn. I love the family picture. What a tender picture. Gives you something to live for. SOmething to hold onto. I hope you keep the bracelet I gave you for Bailey.......for yourself! See you tonight Jenn!
Your sweet little girl is so blessed to have joined your family!
What a blessing it is for you to have spent a couple of beautiful days with her! Our thoughts are with your family! Love, Heath, Emily, & family
Jenn,
Karen just called to tell us about Bailey. You have documented her journey so beautifully. Your family is wonderful and we wish you the best.
Paul and Meredith Gardner
We are so sorry. What a beautiful family picture, you are so blessed to have that. You are an incredible inspiration to us. We love you guys!
Alan and Cristen Garside
Chris, Jenn and Boys,
You are in our thoughts and prayers. She is such a beautiful little girl and very very blessed to belong to such an amazing and strong family. Thank you for sharing her with us.
Love, J. and G. Crandal
Jenn & Chris,
Im a friend of Chris' mom. I wanted to leave you a message to tell you that your family is in my thoughts and prayers. I'm so saddened by your loss, and I feel part of your pain. I too lost a child years ago. Your family and the boys are in my prayers, God bless you all.
Carmen
Blake Family
Thank you for sharing with all of us. Please know that we are thinking of you and are here for you. Our hearts ache for you. We are amazed by your strength.
Love The Hewlett Family
Chris and Jenn,
I am Will's sister. I am saddened by your loss. I have thought about you guys every day since Bailey was born. I talked to Will several times a day and he kept me informed. I think she is beautiful. I also think it was awesome that you got a family photo with her. When my daughter died one thing that gave me comfort was my other child. Hold your boys close. They will be more comfort to you than any words I could say.
I hope you find peace.
Love, Norma Leddington and Family
Those pictures just take my breath away! So beautiful! Thank you for letting all of us be a part of this experience with you. Bailey touched so many people in the short time she was here, I am glad I got to be one of them.
-Erin
I am a friend of Cristen Garside. I was looking at her blog and saw the link to your blog. I can't believe how strong you are. I have three children, my youngest is seven months old. I am in tears as I write this. I have just looked at her viewing pictures, but what really got me was the picture of her precious hand with the ring and bracelet. I hope you feel the love of Heavenly Father while you go through this difficult time. She is absolutely beautiful.
Tina McCafferty
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